My name is Eduard Frasch; I'm 29 years old, an industrial plumber by occupation, and I have been married since 1995. In November 1998
I had an automobile accident on the way home.
Since then I have been paralysed from the neck down and must be
ventilated. I spent six months in an intensive care unit in Hamburg, in the Traumatology Hospital Boberg, followed by around a further year in its paraplegic centre. I have been at home since June 2000 and am being cared for around the clock by a team of carers. I have put together a few photos, so as to give a brief insight into my present life.
I have now been ventilated since 1999 with a PLV.This device
has a somewhat peculiar appearance, but it operates
problemfree regardless of how it's handled.
(proven technology!); it can even tolerate minus
temperatures without any problem. The setting
always ranges between 850ml x 9 breaths per pro min
(lying down) and 900ml x 10 (in a sitting position).
Depending on the level of exertion, I do not
hesitate for long and have the parameters
changed. What is important, I believe,
is to be conscious of ventilation
and to have the values regularly corrected
downwards. One can quickly become
accustomed to hyperventilation and the
subsequent weaning process is not
quite as easy! Initially, I very often
measured the CO2 value of the expired
air and noted that this did not change essentially. The value fluctuates in my
case for the aforementioned values between 27 and 37mmHg
As regards the respiratory pacemaker (diaphragm pacemaker), attempts were made in my case a few times to activate the phrenic nerve (diaphragm nerve). A surgical test is still to be conducted. If the diaphragm can be electrically stimulated via the phrenic nerve, there is no reason not to use an implant. I have asked for some time to ponder this matter.
The PNS (phrenic nerve stimulator) is being marketed by the
Finish company Atrotech. Below is a pdf file with the
operating instructions for the diaphragm pacemaker
|